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Down Syndrome Fact Sheet

October 6, 2013 in The National Dissemination Center for Children with Disabilities by Jess

Definition

Down syndrome is the most common and readily identifiable chromosomal condition associated with intellectual disabilities. It is caused by a chromosomal abnormality: for some unknown reason, an accident in cell development results in 47 instead of the usual 46 chromosomes. This extra chromosome changes the orderly development of the body and brain. In most cases, the diagnosis of Down syndrome is made according to results from a chromosome test administered shortly after birth.

Just as in the normal population, there is a wide variation in mental abilities, behavior, and developmental progress in individuals with Down syndrome. Their level of intellectual disability may range from mild to severe, with the majority functioning in the mild to moderate range.

Because children with Down syndrome differ in ability, it’s important that families and members of the intervention team place  few limitations on potential capabilities and possible achievements. Each child with Down syndrome has his or her own talents and unique capacities, and it’s important to recognize these and reinforce them. As the Family Doctor website states:

In many important ways, children who have Down syndrome are very much the same as other children. They have the same moods and emotions, and they like to learn new things, to play and enjoy life. You can help your child by providing as many chances as possible for him or her to do these things. Read to your child and play with him or her, just as you would any other child. Help your child to have positive experiences with new people and places. Read the rest of this entry →

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Down Syndrome Facebook Pages

August 7, 2012 in Special Education Advisor Blog by Dennise Goldberg

In the last year I have published lists of Special Education Facebook Pages and Autism Facebook Pages that I like.  What was left off of these lists were all of the amazing communities on facebook dedicated to creating a warm, loving, supportive, and educational environment for parents raising children with down syndrome.  So I have compiled the list below but if I have left any off feel free to include them in the comment section below: Read the rest of this entry →

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Middle School Magic or Madness

July 22, 2012 in Special Education Articles by Jess

Last year my daughter entered 6th grade and middle school.  Rachel has Down syndrome and has always been fully included. Middle school conjures up visions of all kinds of difficulties for families of typical students. Add in an intellectual disability and the imagination can go wild with all the “what if’s.”  Based on the testimony of many parents and students, some of those “what ifs” are real and not imagined.  We had a fabulous first year of middle school and I’d like to share some of the reasons I believe this to have been so. Read the rest of this entry →

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I See You

June 24, 2012 in Special Education Advisor Blog by Dennise Goldberg

I see you.
I see you.
 
Others see you flapping your arms, screaming and melting down.
Not me.
I see the person you really are.
Autism is a part of you BUT you are more than that.
You are a whole person with hopes and dreams and the ability to contribute to the world in amazing ways. Read the rest of this entry →
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2012 Update: Essential Special Education Twitter Feeds to Follow

January 27, 2012 in Special Education Advisor Blog by Dennise Goldberg

Below is a list of Special Education Twitter Feeds worth following.  The list includes Parents, Educators, Advocates, Attorneys, Therapists and National Organizations.  This list should keep you up to date on everything happening in and around the world of Special Education. Read the rest of this entry →

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What is Buddy Cruise

January 19, 2012 in Special Education Articles by Jess

Buddy Cruise Inc. is a 501c3 non-profit founded in 2008 by 2 siblings in honor of their brother who has Down syndrome. It’s purpose to provide educational resources for families, while promoting awareness, acceptance & inclusion for individuals with Down syndrome through unique venues. They have several programs that are not only supportive of families touched by Down syndrome but other special needs as well. One of the key programs offered yearly is a conference onboard a cruise ship. Each year families set sail to take part in sessions and activities especially designed for them. Between the planned Buddy Cruise events and all that a cruise has to offer there is something for ALL ages and abilities. Read the rest of this entry →

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Thinking About the Future? Your Child’s Special Education Teacher Should Be

August 7, 2011 in Special Education Articles by Jess

Realistically, your child is going to grow older. Your child with autism, Down syndrome or any other genetic disorder or special need is growing each day and will become an adult. Are you thinking about this time?

Your child’s teachers should be.  Read the rest of this entry →

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Thoughtful Inclusion

December 18, 2010 in Special Education Articles by Jess

I was recently asked to write about the social skills kids need to have acquired to benefit more fully from an integrated setting. While this is a huge question I will write some basic thoughts on this concept.

Many of you who are familiar with my work know that I talk about the social complexities of the classroom learning environment. While we often only teach social skills for the context of playing or conversing the reality is that students use social thinking and related social skills every moment they are around people including more structured environments like classrooms. While I know our political education plan is quick to advocate the inclusion of all kids into “integrated” settings as much as possible, I encourage “thoughtful inclusion” rather than making blanket statements that “all kids should be included”. Read the rest of this entry →

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Special Education Done Right

November 29, 2010 in Special Education Advisor Blog by Doug Goldberg

When Special Education is done correctly, it is a powerful tool to educate children with a disability.   I spend a lot of time writing about special education laws, parental rights, writing IEP’s and non-compliance by School Districts but decided I would spend today writing about some of the most positive, recent examples I’ve seen in Special Education.   There are actually many different types of positive examples I can think of, but I decided to focus on three.  

The first is a program offered for pre-school aged children, in one of the many School Districts I cover in my advocate work, called the Kid Intensive Therapy Center.  This program is 2.5 hours a day 5 days a week and provides intensive/evidence-based early intervention.  The program utilizes applied behavior analysis (ABA) strategies and integrates speech and language into the classroom. Read the rest of this entry →

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Ike Ditzenberger’s Football Glory and the Special Coach that made it Possible

September 29, 2010 in Special Education Advisor Blog by Doug Goldberg

Have you heard about the “Ike Special”?  You most likely heard about Ike Ditzenberger on your local morning news, as a human interest story, or caught his video on You Tube.  If you haven’t, Ike Ditzenberger is a football player with Down Syndrome.  Read the rest of this entry →

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